Inspirational

Wow, I just finished reading Stephen's Story on Facebook. It was inspirational and definitely worth checking out.  https://www.facebook.com/StephensStory
The Facebook page is an account of a 19 year old boy who is suffering terminal cancer. Yet despite his bleak prognosis, he writes in such a positive tone, whilst raising money to help other teenagers with cancer.

Having a terminal illness, it is extremely easy to let it overwhelm you and force you into such a negative state, that some never get out of and I truly believe this negative state allows an illness to take a greater hold of you. However, as I said it is very easy to feel sorry for yourself, yet this boy speaks candidly beyond his years with a positivity that seems super human.

Children never cease to amaze me, no matter what the situation, they seem to always be able to see the positive. You can see it all the time in the kids wards, they are smiling, playing as best they can and often comforting adults, like the little girl, who left notes around the house for her parents to find and take comfort from, after she passed away.

Why is it that the older we become, the more we lean to the negative? Why are children often more selfless then adults in sad situations?

ANZAC day

Today it's ANZAC day, a day to remember and celebrated the men and woman who have fought and died for the protection of our country's freedom. Lest we forget.

Once upon a time......

Just kidding, well after much contemplation, I am going to document, my life as I struggle with a rare lung disease, that nobody knows much about and hopefully a double lung transplant and life beyond.

Probably the best place to start would be December 2013, when I was finally diagnosed with Pulmonary Capillary Haemangiomatosis (PCH it's easier), after 8 years of symptoms. PCH is a extremely rare disease, that generally does not get diagnosed until Post Mortem, so really even though no one really knows what to do with me, I am pretty lucky, that I stumble upon some smart cookies at St Vincent's, who worked it out.

PCH is fatal, and suffers generally decline quickly once the disease takes hold. There isn't a cure or treatment, my only option is to try and get a double lung transplant before it's too late.

So this is where I am at, undergoing a speedy assessment to see if I am elligible for a transplant, which will hopefully give me some of my life back.